An Overview of Social Stigma

Introduction

Stigma, originally referring to the visible marking of people considered inferior, has evolved in modern society into a social concept that applies to different groups or individuals based on certain characteristics such as socioeconomic status, culture, gender, race, religion or health status. Social stigma can take different forms and depends on the specific time and place in which it arises. Once a person is stigmatised, they are often associated with stereotypes that lead to discrimination, marginalisation, and psychological problems.

This process of stigmatisation not only affects the social status and behaviour of stigmatised persons, but also shapes their own self-perception, which can lead to psychological problems such as depression and low self-esteem. Stigmatized people are often aware that they are perceived and treated differently, which can start at an early age. Research shows that children are aware of cultural stereotypes at an early age, which affects their perception of their own identity and their interactions with the world around them.

Description

Stigma (plural stigmas or stigmata) is a Greek word that in its origins referred to a type of marking or the tattoo that was cut or burned into the skin of people with criminal records, slaves, or those seen as traitors in order to visibly identify them as supposedly blemished or morally polluted persons. These individuals were to be avoided particularly in public places.

Social stigmas can occur in many different forms. The most common deal with culture, gender, race, religion, illness and disease. Individuals who are stigmatized usually feel different and devalued by others.

Stigma may also be described as a label that associates a person to a set of unwanted characteristics that form a stereotype. It is also affixed. Once people identify and label one’s differences, others will assume that is just how things are and the person will remain stigmatised until the stigmatising attribute is undetectable. A considerable amount of generalisation is required to create groups, meaning that people will put someone in a general group regardless of how well the person actually fits into that group. However, the attributes that society selects differ according to time and place. What is considered out of place in one society could be the norm in another. When society categorises individuals into certain groups the labelled person is subjected to status loss and discrimination. Society will start to form expectations about those groups once the cultural stereotype is secured.

Stigma may affect the behaviour of those who are stigmatised. Those who are stereotyped often start to act in ways that their stigmatisers expect of them. It not only changes their behaviour, but it also shapes their emotions and beliefs. Members of stigmatised social groups often face prejudice that causes depression (i.e. deprejudice). These stigmas put a person’s social identity in threatening situations, such as low self-esteem. Because of this, identity theories have become highly researched. Identity threat theories can go hand-in-hand with labelling theory.

Members of stigmatised groups start to become aware that they are not being treated the same way and know they are likely being discriminated against. Studies have shown that “by 10 years of age, most children are aware of cultural stereotypes of different groups in society, and children who are members of stigmatized groups are aware of cultural types at an even younger age.”

Main Theories and Contributions

Émile Durkheim

French sociologist Émile Durkheim was the first to explore stigma as a social phenomenon in 1895. He wrote:

Imagine a society of saints, a perfect cloister of exemplary individuals. Crimes or deviance, properly so-called, will there be unknown; but faults, which appear venial to the layman, will there create the same scandal that the ordinary offense does in ordinary consciousnesses. If then, this society has the power to judge and punish, it will define these acts as criminal (or deviant) and will treat them as such.

Erving Goffman

Erving Goffman described stigma as a phenomenon whereby an individual with an attribute which is deeply discredited by their society is rejected as a result of the attribute. Goffman saw stigma as a process by which the reaction of others spoils normal identity.

More specifically, he explained that what constituted this attribute would change over time. “It should be seen that a language of relationships, not attributes, is really needed. An attribute that stigmatizes one type of possessor can confirm the usualness of another, and therefore is neither credible nor discreditable as a thing in itself.”

In Goffman’s theory of social stigma, a stigma is an attribute, behavior, or reputation which is socially discrediting in a particular way: it causes an individual to be mentally classified by others in an undesirable, rejected stereotype rather than in an accepted, normal one. Goffman defined stigma as a special kind of gap between virtual social identity and actual social identity:

While a stranger is present before us, evidence can arise of his possessing an attribute that makes him different from others in the category of persons available for him to be, and of a less desirable kind—in the extreme, a person who is quite thoroughly bad, or dangerous, or weak. He is thus reduced in our minds from a whole and usual person to a tainted discounted one. Such an attribute is a stigma, especially when its discrediting effect is very extensive […] It constitutes a special discrepancy between virtual and actual social identity.

The Stigmatised, The Normal, and The Wise

Goffman divides the individual’s relation to a stigma into three categories:

  • The stigmatised being those who bear the stigma;
  • The normals being those who do not bear the stigma; and
  • The wise being those among the normals who are accepted by the stigmatised as understanding and accepting of their condition (borrowing the term from the homosexual community).

The wise normals are not merely those who are in some sense accepting of the stigma; they are, rather, “those whose special situation has made them intimately privy to the secret life of the stigmatized individual and sympathetic with it, and who find themselves accorded a measure of acceptance, a measure of courtesy membership in the clan.” That is, they are accepted by the stigmatized as “honorary members” of the stigmatised group. “Wise persons are the marginal men before whom the individual with a fault need feel no shame nor exert self-control, knowing that in spite of his failing he will be seen as an ordinary other,” Goffman notes that the wise may in certain social situations also bear the stigma with respect to other normals: that is, they may also be stigmatized for being wise. An example is a parent of a homosexual; another is a white woman who is seen socialising with a black man (assuming social milieus in which homosexuals and dark-skinned people are stigmatised).

A 2012 study showed empirical support for the existence of the own, the wise, and normals as separate groups; but the wise appeared in two forms: active wise and passive wise. The active wise encouraged challenging stigmatization and educating stigmatisers, but the passive wise did not.

Ethical Considerations

Goffman emphasizes that the stigma relationship is one between an individual and a social setting with a given set of expectations; thus, everyone at different times will play both roles of stigmatised and stigmatiser (or, as he puts it, “normal”). Goffman gives the example that “some jobs in America cause holders without the expected college education to conceal this fact; other jobs, however, can lead to the few of their holders who have a higher education to keep this a secret, lest they are marked as failures and outsiders. Similarly, a middle-class boy may feel no compunction in being seen going to the library; a professional criminal, however, writes [about keeping his library visits secret].” He also gives the example of blacks being stigmatised among whites, and whites being stigmatised among blacks.

Individuals actively cope with stigma in ways that vary across stigmatised groups, across individuals within stigmatised groups, and within individuals across time and situations.

The Stigmatised

The stigmatised are ostracised, devalued, scorned, shunned and ignored. They experience discrimination in the realms of employment and housing. Perceived prejudice and discrimination is also associated with negative physical and mental health outcomes. Young people who experience stigma associated with mental health difficulties may face negative reactions from their peer group. Those who perceive themselves to be members of a stigmatised group, whether it is obvious to those around them or not, often experience psychological distress and many view themselves contemptuously.

Although the experience of being stigmatised may take a toll on self-esteem, academic achievement, and other outcomes, many people with stigmatised attributes have high self-esteem, perform at high levels, are happy and appear to be quite resilient to their negative experiences.

There are also “positive stigma”: it is possible to be too rich, or too smart. This is noted by Goffman (1963:141) in his discussion of leaders, who are subsequently given license to deviate from some behavioural norms because they have contributed far above the expectations of the group. This can result in social stigma.

The Stigmatiser

From the perspective of the stigmatiser, stigmatisation involves threat, aversion and sometimes the depersonalisation of others into stereotypic caricatures. Stigmatizing others can serve several functions for an individual, including self-esteem enhancement, control enhancement, and anxiety buffering, through downward-comparison—comparing oneself to less fortunate others can increase one’s own subjective sense of well-being and therefore boost one’s self-esteem.

21st-century social psychologists consider stigmatising and stereotyping to be a normal consequence of people’s cognitive abilities and limitations, and of the social information and experiences to which they are exposed.

Current views of stigma, from the perspectives of both the stigmatiser and the stigmatised person, consider the process of stigma to be highly situationally specific, dynamic, complex and nonpathological.

Gerhard Falk

German-born sociologist and historian Gerhard Falk wrote:

All societies will always stigmatize some conditions and some behaviors because doing so provides for group solidarity by delineating “outsiders” from “insiders”.

Falk] describes stigma based on two categories, existential stigma and achieved stigma. He defines existential stigma as “stigma deriving from a condition which the target of the stigma either did not cause or over which he has little control.” He defines Achieved Stigma as “stigma that is earned because of conduct and/or because they contributed heavily to attaining the stigma in question.”

Falk concludes that “we and all societies will always stigmatize some condition and some behavior because doing so provides for group solidarity by delineating ‘outsiders’ from ‘insiders'”. Stigmatisation, at its essence, is a challenge to one’s humanity – for both the stigmatised person and the stigmatiser. The majority of stigma researchers have found the process of stigmatisation has a long history and is cross-culturally ubiquitous.

Link and Phelan Stigmatisation Model

Bruce Link and Jo Phelan propose that stigma exists when four specific components converge:

  1. Individuals differentiate and label human variations.
  2. Prevailing cultural beliefs tie those labeled to adverse attributes.
  3. Labelled individuals are placed in distinguished groups that serve to establish a sense of disconnection between “us” and “them”.
  4. Labelled individuals experience “status loss and discrimination” that leads to unequal circumstances.

In this model stigmatisation is also contingent on “access to social, economic, and political power that allows the identification of differences, construction of stereotypes, the separation of labeled persons into distinct groups, and the full execution of disapproval, rejection, exclusion, and discrimination.” Subsequently, in this model, the term stigma is applied when labelling, stereotyping, disconnection, status loss, and discrimination all exist within a power situation that facilitates stigma to occur.

Differentiation and Labelling

Identifying which human differences are salient, and therefore worthy of labelling, is a social process. There are two primary factors to examine when considering the extent to which this process is a social one. The first issue is that significant oversimplification is needed to create groups. The broad groups of black and white, homosexual and heterosexual, the sane and the mentally ill; and young and old are all examples of this. Secondly, the differences that are socially judged to be relevant differ vastly according to time and place. An example of this is the emphasis that was put on the size of the forehead and faces of individuals in the late 19th century—which was believed to be a measure of a person’s criminal nature.

Linking to Stereotypes

The second component of this model centres on the linking of labelled differences with stereotypes. Goffman’s 1963 work made this aspect of stigma prominent and it has remained so ever since. This process of applying certain stereotypes to differentiated groups of individuals has attracted a large amount of attention and research in recent decades.

Us and Them

Thirdly, linking negative attributes to groups facilitates separation into “us” and “them”. Seeing the labelled group as fundamentally different causes stereotyping with little hesitation. “Us” and “them” implies that the labelled group is slightly less human in nature and at the extreme not human at all.

Disadvantage

The fourth component of stigmatisation in this model includes “status loss and discrimination”. Many definitions of stigma do not include this aspect, however, these authors believe that this loss occurs inherently as individuals are “labeled, set apart, and linked to undesirable characteristics.” The members of the labelled groups are subsequently disadvantaged in the most common group of life chances including income, education, mental well-being, housing status, health, and medical treatment. Thus, stigmatisation by the majorities, the powerful, or the “superior” leads to the Othering of the minorities, the powerless, and the “inferior”. Whereby the stigmatised individuals become disadvantaged due to the ideology created by “the self,” which is the opposing force to “the Other.” As a result, the others become socially excluded and those in power reason the exclusion based on the original characteristics that led to the stigma.

Necessity of Power

The authors also emphasize the role of power (social, economic, and political power) in stigmatisation. While the use of power is clear in some situations, in others it can become masked as the power differences are less stark. An extreme example of a situation in which the power role was explicitly clear was the treatment of Jewish people by the Nazis. On the other hand, an example of a situation in which individuals of a stigmatised group have “stigma-related processes” occurring would be the inmates of a prison. It is imaginable that each of the steps described above would occur regarding the inmates’ thoughts about the guards. However, this situation cannot involve true stigmatisation, according to this model, because the prisoners do not have the economic, political, or social power to act on these thoughts with any serious discriminatory consequences.

“Stigma Allure” and Authenticity

Sociologist Matthew W. Hughey explains that prior research on stigma has emphasized individual and group attempts to reduce stigma by “passing as normal”, by shunning the stigmatised, or through selective disclosure of stigmatized attributes. Yet, some actors may embrace particular markings of stigma (e.g.: social markings like dishonour or select physical dysfunctions and abnormalities) as signs of moral commitment and/or cultural and political authenticity. Hence, Hughey argues that some actors do not simply desire to “pass into normal” but may actively pursue a stigmatised identity formation process in order to experience themselves as causal agents in their social environment. Hughey calls this phenomenon “stigma allure”.

The “Six dimensions of Stigma”

While often incorrectly attributed to Goffman, the “six dimensions of stigma” were not his invention. They were developed to augment Goffman’s two levels – the discredited and the discreditable. Goffman considered individuals whose stigmatising attributes are not immediately evident. In that case, the individual can encounter two distinct social atmospheres. In the first, he is discreditable—his stigma has yet to be revealed but may be revealed either intentionally by him (in which case he will have some control over how) or by some factor, he cannot control. Of course, it also might be successfully concealed; Goffman called this passing. In this situation, the analysis of stigma is concerned only with the behaviours adopted by the stigmatised individual to manage his identity: the concealing and revealing of information. In the second atmosphere, he is discredited—his stigma has been revealed and thus it affects not only his behaviour but the behaviour of others. Jones et al. (1984) added the “six dimensions” and correlate them to Goffman’s two types of stigma, discredited and discreditable.

There are six dimensions that match these two types of stigma:

  1. Concealable – the extent to which others can see the stigma
  2. Course of the mark – whether the stigma’s prominence increases, decreases, or disappears
  3. Disruptiveness – the degree to which the stigma and/or others’ reaction to it impedes social interactions
  4. Aesthetics – the subset of others’ reactions to the stigma comprising reactions that are positive/approving or negative/disapproving but represent estimations of qualities other than the stigmatised person’s inherent worth or dignity
  5. Origin – whether others think the stigma is present at birth, accidental, or deliberate
  6. Peril – the danger that others perceive (whether accurately or inaccurately) the stigma to pose to them

Types

In Unravelling the contexts of stigma, authors Campbell and Deacon describe Goffman’s universal and historical forms of Stigma as the following.

  • Overt or external deformities – such as leprosy, clubfoot, cleft lip or palate and muscular dystrophy.
  • Known deviations in personal traits – being perceived rightly or wrongly, as weak willed, domineering or having unnatural passions, treacherous or rigid beliefs, and being dishonest, e.g., mental disorders, imprisonment, addiction, homosexuality, unemployment, suicidal attempts and radical political behaviour.
  • Tribal stigma – affiliation with a specific nationality, religion, or race that constitute a deviation from the normative, e.g. being African American, or being of Arab descent in the United States after the 9/11 attacks.

Deviance

Stigma occurs when an individual is identified as deviant, linked with negative stereotypes that engender prejudiced attitudes, which are acted upon in discriminatory behaviour. Goffman illuminated how stigmatised people manage their “Spoiled identity” (meaning the stigma disqualifies the stigmatised individual from full social acceptance) before audiences of normals. He focused on stigma, not as a fixed or inherent attribute of a person, but rather as the experience and meaning of difference.

Gerhard Falk expounds upon Goffman’s work by redefining deviant as “others who deviate from the expectations of a group” and by categorising deviance into two types:

  • Societal deviance refers to a condition widely perceived, in advance and in general, as being deviant and hence stigma and stigmatised. “Homosexuality is, therefore, an example of societal deviance because there is such a high degree of consensus to the effect that homosexuality is different, and a violation of norms or social expectation”.
  • Situational deviance refers to a deviant act that is labelled as deviant in a specific situation, and may not be labelled deviant by society. Similarly, a socially deviant action might not be considered deviant in specific situations. “A robber or other street criminal is an excellent example. It is the crime which leads to the stigma and stigmatization of the person so affected.”

The physically disabled, mentally ill, homosexuals, and a host of others who are labelled deviant because they deviate from the expectations of a group, are subject to stigmatisation – the social rejection of numerous individuals, and often entire groups of people who have been labelled deviant.

Stigma Communication

Communication is involved in creating, maintaining, and diffusing stigmas, and enacting stigmatisation. The model of stigma communication explains how and why particular content choices (marks, labels, peril, and responsibility) can create stigmas and encourage their diffusion. A recent experiment using health alerts tested the model of stigma communication, finding that content choices indeed predicted stigma beliefs, intentions to further diffuse these messages, and agreement with regulating infected persons’ behaviours.

More recently, scholars have highlighted the role of social media channels, such as Facebook and Instagram, in stigma communication. These platforms serve as safe spaces for stigmatised individuals to express themselves more freely. However, social media can also reinforce and amplify stigmatisation, as the stigmatised attributes are amplified and virtually available to anyone indefinitely.

Challenging

Stigma, though powerful and enduring, is not inevitable, and can be challenged. There are two important aspects to challenging stigma: challenging the stigmatisation on the part of stigmatisers and challenging the internalized stigma of the stigmatised. To challenge stigmatisation, Campbell et al. 2005 summarise three main approaches.

  1. There are efforts to educate individuals about non-stigmatising facts and why they should not stigmatise.
  2. There are efforts to legislate against discrimination.
  3. There are efforts to mobilise the participation of community members in anti-stigma efforts, to maximise the likelihood that the anti-stigma messages have relevance and effectiveness, according to local contexts.

In relation to challenging the internalised stigma of the stigmatised, Paulo Freire’s theory of critical consciousness is particularly suitable. Cornish provides an example of how sex workers in Sonagachi, a red light district in India, have effectively challenged internalised stigma by establishing that they are respectable women, who admirably take care of their families, and who deserve rights like any other worker. This study argues that it is not only the force of the rational argument that makes the challenge to the stigma successful, but concrete evidence that sex workers can achieve valued aims, and are respected by others.

Stigmatized groups often harbour cultural tools to respond to stigma and to create a positive self-perception among their members. For example, advertising professionals have been shown to suffer from negative portrayal and low approval rates. However, the advertising industry collectively maintains narratives describing how advertisement is a positive and socially valuable endeavour, and advertising professionals draw on these narratives to respond to stigma.

Another effort to mobilise communities exists in the gaming community through organisations like:

  • Take This – who provides AFK rooms at gaming conventions plus has a Streaming Ambassador Programme to reach more than 135,000 viewers each week with positive messages about mental health, and
  • NoStigmas – whose mission “is to ensure that no one faces mental health challenges alone” and envisions “a world without shame or discrimination related to mental health, brain disease, behavioral disorders, trauma, suicide and addiction” plus offers workplaces a NoStigmas Ally course and individual certifications.

Organisational Stigma

In 2008, an article by Hudson coined the term “organizational stigma” which was then further developed by another theory building article by Devers and colleagues. This literature brought the concept of stigma to the organisational level, considering how organisations might be considered as deeply flawed and cast away by audiences in the same way individuals would. Hudson differentiated core-stigma (a stigma related to the very nature of the organisation) and event-stigma (an isolated occurrence which fades away with time). A large literature has debated how organisational stigma relate to other constructs in the literature on social evaluations. A 2020 book by Roulet reviews this literature and disentangle the different concepts – in particular differentiating stigma, dirty work, scandals – and exploring their positive implications.

Current Research

The research was undertaken to determine the effects of social stigma primarily focuses on disease-associated stigmas. Disabilities, psychiatric disorders, and sexually transmitted diseases are among the diseases currently scrutinised by researchers. In studies involving such diseases, both positive and negative effects of social stigma have been discovered.

Stigma in Healthcare Settings

Recent research suggests that addressing perceived and enacted stigma in clinical settings is critical to ensuring delivery of high-quality patient-centred care. Specifically, perceived stigma by patients was associated with longer periods of poor physical or mental health. Additionally, perceived stigma in healthcare settings was associated with higher odds of reporting a depressive disorder. Among other findings, individuals who were married, younger, had higher income, had college degrees, and were employed reported significantly fewer poor physical and mental health days and had lower odds of self-reported depressive disorder. A complementary study conducted in New York City (as opposed to nationwide), found similar outcomes. The researchers’ objectives were to assess rates of perceived stigma in clinical settings reported by racially diverse New York City residents and to examine if this perceived stigma was associated with poorer physical and mental health outcomes. They found that perceived stigma was associated with poorer healthcare access, depression, diabetes, and poor overall general health.

Research on Self-Esteem

Members of stigmatised groups may have lower self-esteem than those of non-stigmatised groups. A test could not be taken on the overall self-esteem of different races. Researchers would have to take into account whether these people are optimistic or pessimistic, whether they are male or female and what kind of place they grew up in. Over the last two decades, many studies have reported that African Americans show higher global self-esteem than whites even though, as a group, African Americans tend to receive poorer outcomes in many areas of life and experience significant discrimination and stigma.

Mental Disorder

Empirical research on the stigma associated with mental disorders, pointed to a surprising attitude of the general public. Those who were told that mental disorders had a genetic basis were more prone to increase their social distance from the mentally ill, and also to assume that the ill were dangerous individuals, in contrast with those members of the general public who were told that the illnesses could be explained by social and environmental factors. Furthermore, those informed of the genetic basis were also more likely to stigmatize the entire family of the ill. Although the specific social categories that become stigmatised can vary over time and place, the three basic forms of stigma (physical deformity, poor personal traits, and tribal outgroup status) are found in most cultures and eras, leading some researchers to hypothesize that the tendency to stigmatise may have evolutionary roots.

The impact of the stigma is significant, leading many individuals to not seek out treatment. For example, evidence from a refugee camp in Jordan suggests that providing mental health care comes with a dilemma: between the clinical desire to make mental health issues visible and actionable through datafication and the need to keep mental health issues hidden and out of the view of the community to avoid stigma. That is, in spite of their suffering the refugees were hesitant to receive mental health care as they worried about stigma.

Currently, several researchers believe that mental disorders are caused by a chemical imbalance in the brain. Therefore, this biological rationale suggests that individuals struggling with a mental illness do not have control over the origin of the disorder. Much like cancer or another type of physical disorder, persons suffering from mental disorders should be supported and encouraged to seek help. The Disability Rights Movement recognises that while there is considerable stigma towards people with physical disabilities, the negative social stigma surrounding mental illness is significantly worse, with those suffering being perceived to have control of their disabilities and being responsible for causing them. “Furthermore, research respondents are less likely to pity persons with mental illness, instead of reacting to the psychiatric disability with anger and believing that help is not deserved.” Although there are effective mental health interventions available across the globe, many persons with mental illnesses do not seek out the help that they need. Only 59.6% of individuals with a mental illness, including conditions such as depression, anxiety, schizophrenia, and bipolar disorder, reported receiving treatment in 2011.

Reducing the negative stigma surrounding mental disorders may increase the probability of affected individuals seeking professional help from a psychiatrist or a non-psychiatric physician. How particular mental disorders are represented in the media can vary, as well as the stigma associated with each. On the social media platform, YouTube, depression is commonly presented as a condition that is caused by biological or environmental factors, is more chronic than short-lived, and different from sadness, all of which may contribute to how people think about depression.

Causes

Arikan found that a stigmatising attitude to psychiatric patients is associated with narcissistic personality traits.

In Taiwan, strengthening the psychiatric rehabilitation system has been one of the primary goals of the Department of Health since 1985. This endeavour has not been successful. It was hypothesized that one of the barriers was social stigma towards the mentally ill. Accordingly, a study was conducted to explore the attitudes of the general population towards patients with mental disorders. A survey method was utilised on 1,203 subjects nationally. The results revealed that the general population held high levels of benevolence, tolerance on rehabilitation in the community, and non-social restrictiveness. Essentially, benevolent attitudes were favouring the acceptance of rehabilitation in the community. It could then be inferred that the belief (held by the residents of Taiwan) in treating the mentally ill with high regard, and the progress of psychiatric rehabilitation may be hindered by factors other than social stigma.

Artists

In the music industry, specifically in the genre of hip-hop or rap, those who speak out on mental illness are heavily criticised. However, according to an article by The Huffington Post, there’s a significant increase in rappers who are breaking their silence on depression and anxiety.

Addiction and Substance Use Disorders

Throughout history, addiction has largely been seen as a moral failing or character flaw, as opposed to an issue of public health. Substance use has been found to be more stigmatised than smoking, obesity, and mental illness. Research has shown stigma to be a barrier to treatment-seeking behaviours among individuals with addiction, creating a “treatment gap”. A systematic review of all epidemiological studies on treatment rates of people with alcohol use disorders found that over 80% had not accessed any treatment for their disorder. The study also found that the treatment gap was larger in low and lower-middle-income countries.

Research shows that the words used to talk about addiction can contribute to stigmatisation, and that the commonly used terms of “abuse” & “abuser” actually increase stigma. Behavioural addictions (i.e. gambling, sex, etc.) are found to be more likely to be attributed to character flaws than substance-use addictions. Stigma is reduced when Substance Use Disorders are portrayed as treatable conditions. Acceptance and Commitment Therapy has been used effectively to help people to reduce shame associated with cultural stigma around substance use treatment.

The use of the drug methamphetamine has been strongly stigmatised. An Australian national population study have shown that the proportion of Australians who nominated methamphetamine as a “drug problem” increased between 2001–2019. The epidemiological study provided evidence that levels of under-reporting have increased over the period, which coincided with the deployment of public health campaigns on the dangers of ice that had stigmatising elements that portrayal of persons who used the drugs in a negative way. The level of under-reporting of methamphetamine use is strongly associated with increasing negative attitudes towards their use over the same period.

Poverty

Recipients of public assistance programs are often scorned as unwilling to work. The intensity of poverty stigma is positively correlated with increasing inequality. As inequality increases, societal propensity to stigmatise increases. This is in part, a result of societal norms of reciprocity which is the expectation that people earn what they receive rather than receiving assistance in the form of what people tend to view as a gift.

Poverty is often perceived as a result of failures and poor choices rather than the result of socioeconomic structures that suppress individual abilities. Disdain for the impoverished can be traced back to its roots in Anglo-American culture where poor people have been blamed and ostracised for their misfortune for hundreds of years. The concept of deviance is at the bed rock of stigma towards the poor. Deviants are people that break important norms of society that everyone shares. In the case of poverty it is breaking the norm of reciprocity that paves the path for stigmatisation.

Public Assistance

Social stigma is prevalent towards recipients of public assistance programs. This includes programmes frequently utilised by families struggling with poverty such as Head Start and AFDC (Aid To Families With Dependent Children). The value of self-reliance is often at the centre of feelings of shame and the fewer people value self reliance the less stigma affects them psychologically. Stigma towards welfare recipients has been proven to increase passivity and dependency in poor people and has further solidified their status and feelings of inferiority.

Caseworkers frequently treat recipients of welfare disrespectfully and make assumptions about deviant behaviour and reluctance to work. Many single mothers cited stigma as the primary reason they wanted to exit welfare as quickly as possible. They often feel the need to conceal food stamps to escape judgement associated with welfare programs. Stigma is a major factor contributing to the duration and breadth of poverty in developed societies which largely affects single mothers. Recipients of public assistance are viewed as objects of the community rather than members allowing for them to be perceived as enemies of the community which is how stigma enters collective thought. Amongst single mothers in poverty, lack of health care benefits is one of their greatest challenges in terms of exiting poverty. Traditional values of self reliance increase feelings of shame amongst welfare recipients making them more susceptible to being stigmatised.

Epilepsy

Hong Kong

Epilepsy, a common neurological disorder characterised by recurring seizures, is associated with various social stigmas. Chung-yan Guardian Fong and Anchor Hung conducted a study in Hong Kong which documented public attitudes towards individuals with epilepsy. Of the 1,128 subjects interviewed, only 72.5% of them considered epilepsy to be acceptable; 11.2% would not let their children play with others with epilepsy; 32.2% would not allow their children to marry persons with epilepsy; additionally, some employers (22.5% of them) would terminate an employment contract after an epileptic seizure occurred in an employee with unreported epilepsy. Suggestions were made that more effort be made to improve public awareness of, attitude toward, and understanding of epilepsy through school education and epilepsy-related organisations.

Media

In the early 21st century, technology has a large impact on the lives of people in multiple countries and has shaped social norms. Many people own a television, computer, and a smartphone. The media can be helpful with keeping people up to date on news and world issues and it is very influential on people. Because it is so influential sometimes the portrayal of minority groups affects attitudes of other groups toward them. Much media coverage has to do with other parts of the world. A lot of this coverage has to do with war and conflict, which people may relate to any person belonging from that country. There is a tendency to focus more on the positive behaviour of one’s own group and the negative behaviours of other groups. This promotes negative Smartphone thoughts of people belonging to those other groups, reinforcing stereotypical beliefs.

“Viewers seem to react to violence with emotions such as anger and contempt. They are concerned about the integrity of the social order and show disapproval of others. Emotions such as sadness and fear are shown much more rarely.” (Unz, Schwab & Winterhoff-Spurk, 2008, p.141).

In a study testing the effects of stereotypical advertisements on students, 75 high school students viewed magazine advertisements with stereotypical female images such as a woman working on a holiday dinner, while 50 others viewed non-stereotypical images such as a woman working in a law office. These groups then responded to statements about women in a “neutral” photograph. In this photo, a woman was shown in a casual outfit not doing any obvious task. The students that saw the stereotypical images tended to answer the questionnaires with more stereotypical responses in 6 of the 12 questionnaire statements. This suggests that even brief exposure to stereotypical ads reinforces stereotypes. (Lafky, Duffy, Steinmaus & Berkowitz, 1996).

Education and Culture

The aforementioned stigmas (associated with their respective diseases) propose effects that these stereotypes have on individuals. Whether effects be negative or positive in nature, ‘labelling’ people causes a significant change in individual perception (of persons with the disease). Perhaps a mutual understanding of stigma, achieved through education, could eliminate social stigma entirely.

Laurence J. Coleman first adapted Erving Goffman’s (1963) social stigma theory to gifted children, providing a rationale for why children may hide their abilities and present alternate identities to their peers. The stigma of giftedness theory was further elaborated by Laurence J. Coleman and Tracy L. Cross in their book entitled, Being Gifted in School, which is a widely cited reference in the field of gifted education. In the chapter on Coping with Giftedness, the authors expanded on the theory first presented in a 1988 article. According to Google Scholar, this article has been cited over 300 times in the academic literature (as of 2022).

Coleman and Cross were the first to identify intellectual giftedness as a stigmatising condition and they created a model based on Goffman’s (1963) work, research with gifted students, and a book that was written and edited by 20 teenage, gifted individuals. Being gifted sets students apart from their peers and this difference interferes with full social acceptance. Varying expectations that exist in the different social contexts which children must navigate, and the value judgements that may be assigned to the child result in the child’s use of social coping strategies to manage his or her identity. Unlike other stigmatising conditions, giftedness is unique because it can lead to praise or ridicule depending on the audience and circumstances.

Gifted children learn when it is safe to display their giftedness and when they should hide it to better fit in with a group. These observations led to the development of the Information Management Model that describes the process by which children decide to employ coping strategies to manage their identities. In situations where the child feels different, she or he may decide to manage the information that others know about him or her. Coping strategies include disidentification with giftedness, attempting to maintain low visibility, or creating a high-visibility identity (playing a stereotypical role associated with giftedness). These ranges of strategies are called the Continuum of Visibility.

Abortion

While abortion is very common throughout the world, people may choose not to disclose their use of such services, in part due to the stigma associated with having had an abortion. Keeping abortion experiences secret has been found to be associated with increased isolation and psychological distress. Abortion providers are also subject to stigma.

Stigmatisation of Prejudice

Cultural norms can prevent displays of prejudice as such views are stigmatised and thus people will express non-prejudiced views even if they believe otherwise (preference falsification). However, if the stigma against such views is lessened, people will be more willing to express prejudicial sentiments. For example, following the 2008 economic crisis, anti-immigration sentiment seemingly increased amongst the US population when in reality the level of sentiment remained the same and instead it simply became more acceptable to openly express opposition to immigration.

Spatial Stigma

Spatial stigma refers to stigmas that are linked to ones geographic location. This can be applied to neighbourhoods, towns, cities or any defined geographical space. A person’s geographic location or place of origin can be a source of stigma. This type of stigma can lead to negative health outcomes.

This page is based on the copyrighted Wikipedia article < https://en.wikipedia.org/wiki/Social_stigma >; it is used under the Creative Commons Attribution-ShareAlike 3.0 Unported License (CC-BY-SA). You may redistribute it, verbatim or modified, providing that you comply with the terms of the CC-BY-SA.

What is Ableism?

Introduction

Ableism (also known as ablism, disablism (British English), anapirophobia, anapirism, and disability discrimination) is discrimination and social prejudice against people with disabilities or who are perceived to be disabled. Ableism characterises people as defined by their disabilities and inferior to the non-disabled. On this basis, people are assigned or denied certain perceived abilities, skills, or character orientations.

Although ableism and disablism are both terms which describe disability discrimination, the emphasis for each of these terms is slightly different. Ableism is discrimination in favour of non-disabled people. Disablism is discrimination against disabled people.

There are stereotypes which are either associated with disability in general, or they are associated with specific impairments or chronic health conditions (for instance the presumption that all disabled people want to be cured, the presumption that wheelchair users also have an intellectual disability, or the presumption that blind people have some special form of insight). These stereotypes, in turn, serve as a justification for discriminatory practices, and reinforce discriminatory attitudes and behaviours toward people who are disabled. Labelling affects people when it limits their options for action or changes their identity.

In ableist societies, the lives of disabled people is considered less worth living, or disabled people less valuable, even sometimes expendable. The eugenics movement of the early 20th century is considered an expression of widespread ableism.

Ableism can be further understood by reading literature which is written and published by those who experience disability and ableism first-hand. Disability studies is an academic discipline which is also beneficial when non-disabled people pursue it in order to gain a better understanding of ableism.

Etymology

Originating from -able (in disable, disabled) and -ism (in racism, sexism); first recorded in 1980.

Brief History

Canada

Ableism in Canada refers to a set of discourses, behaviours, and structures that express feelings of anxiety, fear, hostility, and antipathy towards people with disabilities in Canada.

The specific types of discrimination that have occurred or are still occurring in Canada include the inability to access important facilities such as infrastructure within the transport network, restrictive immigration policies, involuntary sterilisation to stop people with disabilities from having offspring, barriers to employment opportunities, wages that are insufficient to maintain a minimal standard of living, and institutionalisation of people with disabilities in substandard conditions.

Austerity measures implemented by the government of Canada have also at times been referred to as ableist, such as funding cuts that put people with disabilities at risk of living in abusive arrangements.

Nazi Germany

In July 1933, Hitler, along with the Nazi Government, implemented the Law for the Prevention of Progeny with Hereditary Diseased Offspring. Essentially, this law implemented sterilisation practices for all people who had what were considered hereditary disabilities. For example, disabilities such as mental illness, blindness and deafness were all considered hereditary diseases; therefore, people with these disabilities were sterilised. The law also created propaganda against people with disabilities; people with disabilities were displayed as unimportant towards progressing the Aryan race.

In 1939 Hitler signed the secret euthanasia program decree Aktion T4, which authorized the killing of selected patients diagnosed with chronic neurological and psychiatric disorders. This programme killed about 70,000 disabled people before it was officially halted by Hitler in 1941 under public pressure, and it was unofficially continued out of the public eye, killing a total of 200,000 or more by the end of Hitler’s reign in 1945.

United Kingdom

In the UK, disability discrimination became unlawful as a result of the Disability Discrimination Act 1995, and the Disability Discrimination Act 2005. These were later superseded, retaining the substantive law, by the Equality Act 2010. The Equality Act 2010 brought together protections against multiple areas of discriminatory behaviour (disability, race, religion and belief, sex, sexual orientation, gender identity, age and pregnancy – the so-called “protected characteristics”).

Under the Equality Act of 2010, there are prohibitions addressing several forms of discrimination including:

  • Direct discrimination (s.13);
  • Indirect discrimination (s.6, s.19);
  • Harassment (s.26);
  • Victimisation (s.27);
  • Discrimination arising from disability (s.15); and
  • Failure to make reasonable adjustments (s.20).

Part 2, Chapter 1, Section 6, of the Equality Act 2010 states that:

“A person (P) has a disability if (a) P has a physical or mental impairment, and (b) the impairment has a substantial and long-term adverse effect on P’s ability to carry out normal day-to-day activities.”

United States

Much like many minority groups, disabled Americans were often segregated and denied certain rights for a majority of American history. In the 1800s, a shift from a religious view to a more scientific view took place and caused more individuals with disabilities to be examined. Public stigma began to change after World War II when many Americans returned home with disabilities. In the 1960s, following the civil rights movement in America, the world began the disabled rights movement. The movement was intended to give all individuals with disabilities equal rights and opportunities. Until the 1970s, ableism in the United States was often codified into law. For example, in many jurisdictions, so-called “ugly laws” barred people from appearing in public if they had diseases or disfigurements that were considered unsightly.

Rehabilitation Act of 1973

Section 504 and other sections of the Rehabilitation Act of 1973 enacted into law certain civil penalties for failing to make public places comply with access codes known as the ADA Access Guidelines (ADAAG). These laws prohibit direct discrimination against disabled people in government programs, employment, public transit, and public accommodations like stores and restaurants.

Voting Accessibility for the Elderly and Handicapped Act of 1984

The Voting Accessibility for the Elderly and Handicapped Act was passed to promote the fundamental right to vote by improving access for elderly individuals and people with disabilities to registration facilities and polling places for Federal elections by requiring access to polling places used in Federal elections and available registration and voting aids, such as instructions in large type.

Fair Housing Amendments Act of 1988

The federal Fair Housing Amendments Act of 1988 prohibits housing discrimination on the basis of mental or physical disability and requires that newly constructed multi-family housing meet certain access guidelines while requiring landlords to allow disabled persons to modify existing dwellings for accessibility. It was an amendment for Title VIII of the Civil Rights Act of 1968. The law also protects people with mental disabilities by prohibiting discrimination in housing and allowing people with mental illness or any other disability to live where they choose.

Americans with Disabilities Act of 1990

The Americans with Disabilities Act of 1990 (ADA) was passed on July 26, 1990, during the George H.W. Bush administration and amended on 01 January 2009. The act gave individuals with disabilities civil rights protections.

Individuals with Disabilities Education Act

The Individuals with Disabilities Education Act (IDEA) ensures students with a disability are provided with Free Appropriate Public Education (FAPE) that is tailored to their individual needs. IDEA was previously known as the Education for All Handicapped Children Act (EHA) from 1975 to 1990. In 1990, the United States Congress re-authorised EHA and changed the title to IDEA (Public Law No. 94-142). Overall, the goal of IDEA is to provide children with disabilities the same opportunity for education as those students who do not have a disability.

UN Convention on the Rights of Persons with Disabilities

In May 2012, the UN Convention on the Rights of Persons with Disabilities was ratified. The document establishes the inadmissibility of discrimination on the basis of disability, including in employment. In addition, the amendments create a legal basis for significantly expanding opportunities to protect the rights of persons with disabilities, including in the administrative procedure and in court. The law defined specific obligations that all owners of facilities and service providers must fulfil to create conditions for disabled people equal to the rest.

Workplace

In 1990, the Americans with Disabilities Act was put in place to prohibit private employers, state and local government, employment agencies and labour unions from discrimination against qualified disabled people in job applications, when hiring, firing, advancement in workplace, compensation, training, and on other terms, conditions and privileges of employment. The US Equal Employment Opportunity Commission (EEOC) plays a part in fighting against ableism by being responsible for enforcing federal laws that make it illegal to discriminate against a job applicant or an employee because of the person’s race, colour, religion, sex (including pregnancy, gender identity, and sexual orientation), national origin, age (40 or older), disability or genetic information.

Similarly in the UK, the Equality Act 2010 was put in place and provides legislation that there should be no workplace discrimination. Under the act, all employers have a duty to make reasonable adjustments for their disabled employees to help them overcome any disadvantages resulting from the impairment. Failure to carry out reasonable adjustment amounts to disability discrimination.

Employers and managers are often concerned about the potential cost associated with providing accommodations to employees with disabilities. However, many accommodations have a cost of $0 (59% in a survey of employers conducted by the Job Accommodation Network (JAN)), and accommodation costs may be offset by the savings associated with employing people with disabilities (higher performance, lower turnover costs). Moreover, organisational interventions that support workplace inclusion of the most vulnerable, such as neurodivergent individuals, are likely to benefit all employees.

Healthcare

Ableism is prevalent in the many different divisions of healthcare, whether that be in prison systems, the legal or policy side of healthcare, and clinical settings. The following subsections will explore the ways in which ableism makes its way into these areas of focus through the inaccessibility of appropriate medical treatment.

Ableism in Clinical Settings

Just as in every other facet of life, ableism is present in clinical healthcare settings. A 2021 study of over 700 physicians in the United States found that only 56.5% “strongly agreed that they welcomed patients with disability into their practices.” The same study also found that 82.4% of these physicians believed that people with a significant disability had a lower quality of life than those without disabilities. Data from the 1994-1995 National Health Interview Survey-Disability Supplement has shown that those with disabilities have lower life expectancies than those without. While this can be explained by a myriad of factors, one of these factors is the ableism experienced by those with disabilities in clinical settings. Those with disabilities may be more hesitant to seek care when needed due to barriers created by ableism such as dentist chairs that are not accessible or offices filled with bright lights and noises that can be triggering.

In June 2020, near the start of the COVID-19 pandemic, a 46-year-old quadriplegic in Austin, Texas named Michael Hickson was denied treatment for COVID-19, sepsis, and a urinary tract infection and died 6 days after treatment was withheld. His physician was quoted as having said that he had a “preference to treat patients who can walk and talk.” The physician also had stated that due to Hickson’s brain injury he didn’t have much of a quality of life. Several complaints have since been filed with the Texas Office of Civil Rights and many disability advocacy groups have become involved in the case.

Several states, including Alabama, Arizona, Kansas, Pennsylvania, Tennessee, Utah, and Washington allow healthcare providers, in times of crisis, to triage based on the perceived quality of life of the patients, which tends to be perceived as lower for those with disabilities. In Alabama, healthcare providers are allowed to exclude patients with disabilities from treatment who require assistance with various daily tasks.

Healthcare in Criminal Justice Settings

The provision of effective healthcare for people with disabilities in criminal justice institutions is an important issue because the percentage of disabled people in such facilities has been shown to be larger than the percentage in the general population. A lack of prioritisation on working to incorporate efficient and quality medical support into prison structures endangers the health and safety of disabled prisoners.

Limited access to medical care in prisons consists of long waiting times to meet with physicians and to consistently receive treatment, as well as the absence of harm reduction measures and updated healthcare protocols. Discriminatory medical treatment also takes place through the withholding of proper diets, medications, and assistance (equipment and interpreters), in addition to failures to adequately train prison staff. Insufficient medical accommodations can worsen prisoners’ health conditions through greater risks of depression, HIV/AIDS and Hepatitis C transmission, and unsafe drug injections.

In Canada, the utilization of prisons as psychiatric facilities can involve issues concerning inadequate access to medical support, particularly mental health counselling, and the inability of prisoners to take part in decision-making regarding their medical treatment. The usage of psychologists employed by the correctional services organisation and the lack of confidentiality in therapeutic sessions also present barriers for disabled prisoners. This makes it more difficult for prisoners with disabilities to express discontentment about problems in the available healthcare since it may later complicate their release from the prison.

In the United States, although the population of older adults in the criminal justice system is growing rapidly, older prisoners’ healthcare needs are not being sufficiently met. One specific issue includes a lack of preparation for correctional officers to be able to identify geriatric disability. Regarding this under-recognition of disability, further improvement is needed in training programs to allow officers to learn when and how to provide proper healthcare intervention and treatment for older adult prisoners.

Healthcare Policy

Ableism has long been a serious concern in healthcare policy, and the COVID-19 pandemic has greatly exaggerated and highlighted the prevalence of this serious concern. Studies frequently show what a “headache” patients with disabilities are for the healthcare system. In a 2020 study, 83.6% of healthcare providers preferred patients without disabilities to those with disabilities. It is important to assess the impact of such views on care for these individuals and healthcare policies. One example is the crisis standards of care. Though these standards have been in place before the COVID-19 pandemic, crisis standards of care have come to the forefront of healthcare policy due to their timely relevance. In order to maximize space in hospitals, “states, localities, and individual hospitals… explicitly rul[ed] out treatment for people with certain ‘pre-existing conditions,’ choosing ‘healthy’ non-disabled people to live, and ‘sicker’ disabled people to die.” This policy is especially concerning since, according to the CDC, people with disabilities are at a heightened risk for contracting COVID-19. Additionally, in the second wave of the COVID-19 pandemic in the U.K., people with intellectual disabilities were told that they will not be resuscitated if they become ill with COVID-19. These examples illustrate how the devaluation of disabled people’s lives is done for logistical reasons and considered ethically sound.

Another policy example that clearly demonstrates ableism is that of ventilator rationing for hospitals during the pandemic. New York State instituted explicit guidelines for the distribution of ventilators, naming specific exclusion criteria for access to the ventilators. These criteria were made on the basis of a patient’s functional status – read: presence of disabilities – and prognosis. Some examples given for functional statuses include recent cardiac arrests, hypotension, and currently needing a ventilator, inter alia.

In the UK (England, Scotland and Wales) it is permitted for an abortion to be performed on the basis of the foetus having physical or mental abnormalities.

Education

Ableism often makes the world inaccessible to disabled people, especially in schools. Within education systems the use of the medical model of disability and social model of disability contributes to the divide between students within special education and general education classrooms. Oftentimes, the medical model of disability portrays the overarching idea that disability can be corrected and diminished at the result of removing children from general education classrooms. This model of disability suggests that the impairment is much more important than the person as if they are helpless and need to be separated from those who are not disabled. The social model of disability as society slowly becomes more progressive at making changed within inclusive education suggests that people with impairments are disabled at the result of the way society acts. When students with disabilities are pulled out of their classrooms in order to receive the support they need this oftentimes leads their peers to socially reject them out of the habit of not forming relationships with them in the classroom. By using the social model of disability, inclusive setting based schools where the social norm is not to alienate their peers can promote more teamwork and less division throughout many campuses. Through implementing the social model of education within modern forms of inclusive education actively provides children of all abilities with the important role of changing discriminatory attitudes within the school system. For example, a disabled student may need to read text instead of listening to a tape recording of the text. In the past, schools have focused too much on fixing the disability, but due to progressive reforms, schools are now focused on minimising the impact of a student’s disability, and giving support, skills, and more opportunities to live a full life. Moreover, schools are required to maximise access to their entire community. In 2004, Congress made into law the Individuals with Disabilities Education Act, which states that free and appropriate education is eligible to children with disabilities with insurance of necessary services. Congress later amended the law, in 2015, to include the Every Student Succeeds Act, which guarantees equal opportunity for people with disabilities full participation in society, and the tools for overall independent success.

Media

Disabilities are not only misrepresented in the media but often underrepresented as well. While roughly 20% of the US population is disabled, only 2% of characters played in television and film have a disability. 95% of the time, disabled characters are played by actors who are not disabled.

These common ways of framing disability are heavily criticised for being dehumanising and failing to place importance on the perspectives of disabled people.

Disabled Villain

One common form of media depiction of disability is to portray villains with a mental or physical disability. Lindsey Row-Heyveld notes, for instance, “that villainous pirates are scraggly, wizened and inevitably kitted out with a peg leg, eye patch or hook hand, whereas heroic pirates look like Johnny Depp’s Jack Sparrow”. The disability of the villain is meant to separate them from the average viewer and dehumanise the antagonist. As a result, stigma forms surrounding the disability and the individuals that live with it.

There are many instances in literature where the antagonist is depicted as having a disability or mental illness. Some common examples include Captain Hook, Darth Vader and the Joker. Captain Hook is notorious for having a hook as a hand and seeks revenge on Peter Pan for his lost hand. Darth Vader’s situation is unique because Luke Skywalker is also disabled. Luke’s prosthetic hand looks lifelike, whereas Darth Vader appears robotic and emotionless because his appearance does not resemble humans and takes away human emotions. The Joker is a villain with a mental illness, and he is an example of the typical depiction of associating mental illness with violence.

Inspiration Porn

Inspiration porn is the use of disabled people performing ordinary tasks as a form of inspiration. Criticisms of inspiration porn say that it distances disabled people from individuals who are not disabled and portrays disability as an obstacle to overcome or rehab.

One of the most common examples of inspiration porn includes the Paralympics. Athletes with disabilities often get praised as inspirational because of their athletic accomplishments. Critics of this type of inspiration porn have said, “athletic accomplishments by these athletes are oversimplified as ‘inspirational’ because they’re such a surprise.”

Pitied Character

In many forms of media such as films and articles a disabled person is portrayed as a character who is viewed as less than able, different, and an “outcast.” Hayes and Black (2003) explore Hollywood films as the discourse of pity towards disability as a problem of social, physical, and emotional confinement. The aspect of pity is heightened through the storylines of media focusing on the individual’s weaknesses as opposed to strengths and therefore leaving audiences a negative and ableist portrayal towards disability.

Supercrip Stereotype

The supercrip narrative is generally a story of a person with an apparent disability who is able to “overcome” their physical differences and accomplish an impressive task. Professor Thomas Hehir’s “Eliminating Ableism in Education,” gives the story of a blind man who climbs Mount Everest as an example of the supercrip narrative. The Paralympics are another example of the supercrip stereotype, since they generate a large amount of media attention, and demonstrate disabled people doing extremely strenuous physical tasks. Although at face value, this may appear inspiring, Hehir explains that many people with disabilities view these news stories as setting unrealistic expectations. Additionally, Hehir mentions that supercrip stories imply that disabled people are required to perform these impressive tasks to be seen as an equal and avoid pity from those without disabilities.

Disability studies scholar Alison Kafer describes how these narratives reinforce the problematic idea that disability can be overcome by an individual’s hard work, in contrast to other theories which understand disability to be a result of a world that is not designed to be accessible. Supercrip stories reinforce ableism by emphasizing independence, reliance on one’s body, and the role of individual will in self-cure. Other examples of the supercrip narrative include the stories of Rachael Scdoris, the first blind woman to race in the Iditarod, and Aron Ralston, who has continued to climb after the amputation of his arm.

Environmental and Outdoor Recreation Media

Disability has often been used as a short-hand in environmental literature for representing distance from nature, in what Sarah Jaquette Ray calls the “disability-equals-alienation-from-nature trope.” An example of this trope can be seen in Moby Dick, as Captain Ahab’s lost leg symbolizes his exploitative relationship with nature. Additionally, in canonical environmental thought, figures such as Ralph Waldo Emerson and Edward Abbey wrote using metaphors of disability to describe relationships between nature, technology, and the individual.

Ableism in outdoor media can also be seen in promotional materials from the outdoor recreation industry: Alison Kafer highlights a notable example of ableist outdoor media depiction seen in a Nike advertisement. In 2000, this ad (which can be viewed at this link) ran in eleven outdoor magazines promoting a pair of running shoes. The advertisement was withdrawn after the company received over six hundred complaints in the first two days after its publication, and Nike apologized for publishing it. Kafer notes that the ad is deeply offensive in the way it depicts those with spinal cord injuries and those who use wheelchairs, describing the reader post-spinal injury as a “drooling, misshapen, non-extreme-trail-running husk of [their] former self, forced to roam the Earth in a motorized wheelchair.” The language in this ad explicitly draws a connection between the reader’s self-identity and happiness with their ability to engage in “extreme trail running” while insulting those who use wheelchairs, and the advertisement’s publication reveals Nike’s assumptions that readers of outdoor magazines are neither disabled nor allies of the disabled, and that disability prevents encounters with nature.

This ad displays the arrogance of this company, as Nike’s ad promises nondisabled runners and hikers the ability to protect their bodies against disability by purchasing this pair of shoes. This framing supports the illusion of a pure, unassisted “extreme” recreation experience that simply does not exist, as all interactions with nature are mediated by technology. At the same time, it conceals the truth that all people exist on a spectrum of disability, as bodies change over time, bodies can be both abled and disabled in different ways, and those who consider themselves abled may only be temporarily so. This campaign serves as an example of a corporation preying on fear of disability to sell their product, showing how deeply ingrained ableism is within the extreme sports and outdoor recreation communities.

Sports

Sports are often an area of society in which ableism is evident. In sports media, disabled athletes are often portrayed to be inferior. When disabled athletes are discussed in the media, there is often an emphasis on rehabilitation and the road to recovery, which is inherently a negative view on the disability. Oscar Pistorius is a South African runner who competed in the 2004, 2008, and 2012 Paralympics and the 2012 Olympic games in London. Pistorius was the first double amputee athlete to compete in the Olympic games. While media coverage focused on inspiration and competition during his time in the Paralympic games, it shifted to questioning whether his prosthetic legs gave him an advantage while competing in the Olympic games

Types of Ableism

  • Physical ableism is hate or discrimination based on physical disability.
  • Sanism, or mental ableism, is discrimination based on mental health conditions and cognitive disabilities.
  • Medical ableism exists both interpersonally (as healthcare providers can be ableist) and systemically, as decisions determined by medical institutions and caregivers may prevent the exercise of rights from disabled patients like autonomy and making decisions. The medical model of disability can be used to justify medical ableism.
  • Structural ableism is failing to provide accessibility tools like ramps, wheelchairs, special education equipment, etc.
  • Cultural ableism is behavioural, cultural, attitudinal and social patterns that may discriminate against disabled people, including by denying, dismissing or invisibilising disabled people, and by making accessibility and support unattainable.
  • Internalised ableism is when a disabled person discriminates against themselves and other disabled people by holding the view that disability is something to be ashamed of, or something to hide, or by refusing accessibility or support. Internalised ableism may be a result of mistreatment of disabled individuals. It is a form of gaslighting from society.
  • Hostile ableism is a cultural or social kind of ableism where people get hostile against symptoms of a disability or phenotypes of the disabled person.
  • Benevolent ableism: Ableism often has a benevolent appearance. People treat the disabled person well, yet also like a child (“infantilisation”), instead of considering them as full grown adults. Examples include ignoring disabilities, not respecting the life experiences of the disabled person, microaggression, not considering the opinion of the disabled person in important decision making, invasion of privacy or personal boundaries, forced corrective measures, unwanted help, not listening to disabled people, etc.
  • Ambivalent ableism can be characterised as somewhere in between hostile and benevolent ableism.

Causes of Ableism

Ableism may have evolutionary and existential origins (fear of contagion, fear of death). It may also be rooted in belief systems (social Darwinism, meritocracy), language (such as “suffering from” disability), or unconscious biases.

This page is based on the copyrighted Wikipedia article < https://en.wikipedia.org/wiki/Ableism >; it is used under the Creative Commons Attribution-ShareAlike 3.0 Unported License (CC-BY-SA). You may redistribute it, verbatim or modified, providing that you comply with the terms of the CC-BY-SA.

What is Weathering Hypothesis?

Introduction

The weathering hypothesis was proposed to account for early health deterioration as a result of cumulative exposure to experiences of social, economic and political adversity.

It is well documented that minority groups and marginalised communities suffer from poorer health outcomes. This may be due to a multitude of stressors including prejudice, social alienation, institutional bias, political oppression, economic exclusion and racial discrimination. The weathering hypothesis proposes that the cumulative burden of these stressors as individuals age is “weathering,” and the increased weathering experienced by minority groups compared to others can account for differences in health outcomes. In recent years, the biological plausibility of the weathering hypothesis has been investigated in studies evaluating the physiological effects of social, environmental and political stressors among marginalised communities. This has led to more widespread use of the weathering hypothesis as a framework for explaining health disparities on the basis of differential exposure to racially based stressors. Researchers have also identified patterns connecting weathering to biological phenomena associated with stress and aging, such as allostatic load, epigenetics, and telomere shortening.

Origins

The weathering hypothesis was initially formulated by Dr. Arline T. Geronimus to explain the poor maternal health and birth outcomes of African American women that she observed in correspondence with increased age. While working part-time at a school for pregnant teenagers in Trenton, New Jersey, Geronimus first noticed that the teens who came to the school tended to have far more health problems than her classmates at Princeton University. She thus began to wonder whether the health conditions of the teens at that clinic may have been caused by their environment. Subsequent research on the disparity in maternal health between African American and white women led Geronimus to propose the weathering hypothesis. She proposed that the accumulation of cultural, social and economic disadvantages may lead to earlier deterioration of health among African American women compared to their non-Hispanic, white counterparts. Geronimus specifically chose the term weathering as a metaphor for the effects she perceived that exposure to stress was having on the health of marginalised people. While the weathering hypothesis was initially proposed based on observations of patterns in maternal health, academics have expanded its application as a framework to examine other health disparities as well.

Geronimus’ Research

While conducting research in the Department of Public Health Policy and Administration as a graduate student at the University of Michigan in 1992, Geronimus noticed a trend in disparities between the fertility of African American women versus their white counterparts. She noted that while the average white woman experiences her point of highest fertility and lowest risk of pregnancy complications or neonatal mortality between her 20’s and 30’s, this generalisation did not apply to African American women. Instead, among African American women, teen mothers are most likely to have healthy pregnancies and offspring. The data indicated a widening disparity in black-white infant mortality as maternal ages increase. Subsequently, Geronimus proposed the “weathering hypothesis,” which she initially conceived as a potential explanation for the patterns of racial variation in infant mortality with increasing maternal age.

Health Disparities

In the context of the weathering hypothesis, individual health is dynamic and shaped over time by social, economic, and environmental influences. These social determinants dictate what different demographics are exposed to as they develop and age. Racism and discrimination are two specific social determinants that lay the foundation for systemic inequality in access and upward mobility. This entrenchment of social inequities disproportionately impacts minorities and communities of colour, who remain in environments of poverty that have significantly more stressors than those of wealthier, predominantly white communities. These stressors – and the associated burden of coping with them – manifest as physiological responses that have detrimental effects on individual health, often leading to a disproportionately high occurrence of chronic illness and shorter life expectancy in minority communities. Multi-ethnic studies have yielded significant data demonstrating that weathering – accumulated health risk due to social, economic and environmental stressors – is a manifestation of social stratification that systemically influences disparities in health and mortality between dominant and minority communities.

Maternal Health

Maternal mortality is three to four times higher for Black mothers than white mothers in the United States. Infant mortality is also twice as high for infants born to non-Hispanic Black mothers compared to infants born to non-Hispanic white mothers. Additionally, there are racial disparities for negative birth outcomes like low birth weight, which has been found to influence risk of infant mortality and developmental outcomes after birth, and preterm birth. Across all women, older maternal age is associated with higher rates of these negative outcomes during pregnancy, but studies have consistently found that rates rise more rapidly for Black women than white women. The weathering hypothesis proposes that the accumulation of racial stress over Black women’s lives contributes to this observed pattern of racial disparities in maternal health and birth outcomes that increase with maternal age. Research has consistently identified an association between preterm birth and low birth weight in Black women and maternal stress caused by experiences of racism, systemic bias, socioeconomic disadvantage, segregated neighbourhoods, and high rates of violent crime. There is biological evidence of weathering, including the finding that Black women have shorter telomeres, a biological indicator of age, when compared with white women of the same chronological age. Though increased socioeconomic status serves as a protective factor against negative birth outcomes for non-Hispanic white mothers, disproportionate rates of preterm birth and low birth weight for non-Hispanic Black mothers have been found at every education and income level. The weathering hypothesis has also been used to explain this trend because upward socioeconomic mobility is associated with increased exposure to discrimination for women of colour.

There is modest evidence supporting the effects of weathering on mothers from other minority groups, including for high birth weight outcomes among American Indian/Alaska Native women. Research has started to explore whether the weathering hypothesis could also explain racial disparities in the outcomes of assisted reproductive technologies, but so far the findings are inconsistent.

Mental Health

Research shows that mental health disparities among marginalized communities exist. Daily discrimination faced by marginalised groups have been found to be associated with increased depressive symptoms and feelings of loneliness. Low-income communities are more likely to have severe mental illnesses, which is frequently heightened by the inaccessibility to quality healthcare. Researchers found that persisting epigenetic changes lead to increased risk of postpartum depression as a result of adverse life events and cumulative life stress among Black, Latinx, and low-income women. In a study assessing African American men, experiences of racism were linked to a poorer mental health state.

Intersectionality of Systems of Oppression

Intersectionality is a term coined by Kimberlé Crenshaw to describe the interconnected nature of different systems of oppression, the layered effects of which can be seen in the healthcare system. Research indicates that lower class status and increased depressive symptoms are associated with higher levels of biological weathering among Black individuals in comparison to white individuals. In a study exploring disparities in mental health, researchers found that Black sexual minority women reported higher frequencies of discrimination and decreased levels of social and psychological well-being than their white sexual minority women counterparts. Black sexual minority women had decreased levels of social well-being and increased levels of depressive symptoms in comparison to Black sexual minority men. African American women are also more likely to contract COVID-19 than African American men and white women. The prevalence of medical racism and sexism (lack of quality healthcare, harmful experimentation, etc.) has led to negative relationships with healthcare systems and increased risk of negative sexual and reproductive health outcomes among African American women. Existing research show how systems of oppression work together to oppress marginalized groups within the healthcare system and, as a result, these groups disproportionately experience negative health effects.

Criticism and Related Theories

Arline Geronimus faced significant pushback for the weathering hypothesis, including from members of the medical community who believed there was a genetic or evolutionary explanation for racial differences in health outcomes. There was some early criticism regarding the quality of her data, though the evidence of weathering and health disparities has grown since. Others pushed back against the weathering hypothesis because its application to racial disparities in maternal health seemed to contradict what advocacy groups had been saying about the negative consequences of teen pregnancy on young mothers. A further criticism of this theory believes that Geronimus and others have not sufficiently demonstrated a link between weathering and racial and gender disparities in life expectancy.

The weathering hypothesis was initially proposed as a sociological explanation for health disparities, but it is closely related to biological theories like the allostatic load model, which proposes that an individual’s exposure to repeated or chronic stress over their lifetime has physiological consequences which can be measured through various biomarkers. Research has tended to discuss allostasis and allostatic load as the molecular mechanism behind the weathering hypothesis, and Geronimus herself went on to study racial differences in allostatic load. Another related theory is the life course approach, which emphasizes focus on cumulative life experiences rather than maternal risk factors as an explanation for birth outcome disparities. Researchers have also been interested in studying the possibility of children inheriting the epigenetic changes which result from their mother’s cumulative life stress, which could relate the weathering hypothesis with transgenerational trauma.

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